SMA Angels Charity - Joining together to fight Spinal Muscular Atrophy

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Joining Together to Fight SMA

SMA Angels Charity is a 100% volunteer, non-profit charity dedicated to fight in the battle against Spinal Muscular Atrophy ("SMA"). The charity was formed in 1999 when twins Cassidy and Skylar Swanson were diagnosed with the severest form of SMA.

SMA is a devastating neuromuscular disease. In its most severe form it is the "Number One Genetic Killer of Children Under Two". At present there is no cure or treatment.

Saturday, September 18th
at Kilkenney Marina
in Richmond Hill

First place: $1,000

2nd place: $300

3rd place: $100

Event Poster

Print entry form

Online entry form (enter password fish)

Print sponsor form

Online sponsor form (enter password fish)



Video in memory of Cassie Swanson
.

The song "Sweet Little Angel"
is from the Song of Dreams CD

CHAMPIONING FOR SMA AND NUTRITION

SMA Angels Charity partners with the Pediatric Motor Disorders Research Program at the University of Utah and funds project to investigate the impact of nutrition on SMA and to help SMA families evaluate their current nutritional regimen.

History has shown it is the families that are the driving force in the quest for the best quality of care for their children with special needs. We are asking families to help us in our effort to investigate the impact of nutrition on SMA. You can support this effort by filling out the nutritional survey at www.smaandnutrition.org. Thank you for championing for this disease and your help in this effort to bring nutrition to the forefront.

More info

 

 

Song of Dreams CD - purchase
By Jana James
Songs of Hope, Strength, Faith & Love - $15
Profits go to SMA Angels Charity, Inc.

Monies raised are used in the battle to find a cure or treatment for Spinal Muscular Atrophy (SMA) - "The Number One Genetic Killer Of Children Under The Age Of Two"

Thank you Captain Jack Sparrow & Crew, volunteers and supporters for making our 3rd annual SMA Angels Charity Treasure Hunt/Yard Sale the best and most profitable yet.

Thank you for joining in the fight against SMA.

To view/order pictures please go to: http://smaangels.shutterfly.com

Thank You 2009 Sponsors:

Thank You Supporters:

Chick-Fil-A Mall Boulevard
Hernandez Collision Center
Host South
MacAljon
Savannah Morning News
South University
SCAD
WSAV
WTOC

proud member of:

If you are a individual or family member affected by SMA please join the International SMA Patient Registry