Links

Because SMA is not a well-known disease, we must take a pro-active stand to educate ourselves and our communities about this devastating disease. The following websites are organizations which provide information and support for family and friends who have been affected by Spinal Muscular Atrophy.

The SMA Foundation
The mission of the Spinal Muscular Atrophy Foundation, a 501(c)(3) tax-exempt foundation, is to accelerate the development of a treatment or a cure for SMA, the number one genetic killer of infants and toddlers. The Foundation is dedicated to preventing the death and suffering of thousands of children whose lives depend upon increasing research funding to fulfill the scientific opportunity to cure the disease.

Andrew's Buddies
This is a national organization committed to accelerating a cure for spinal muscular atrophy (SMA), the number-one inherited killer of children under two. On this site, you will find up-to-date reports from the research front. And you will find ways that you can become involved in this fight yourself.

SMA Support Inc.
SMA Support Inc. was founded in 1999 as a non-profit, tax-exempt 501(c)(3) charity organization dedicated to providing support in the form of equipment and supplies not covered by insurance to family, as well as emotional, financial and informational support to friends, individuals and caregivers on all aspects regarding the devastating genetic disease Spinal Muscular Atrophy.

Miracle for Madison Fund
Spinal Muscular Atrophy Research At The Ohio State University

The Jennifer Trust for Spinal Muscular Atrophy (JTSMA)
The Jennifer Trust for Spinal Muscular Atrophy was founded in 1985 as a support group for people with SMA and for their families. Since then it has grown to have over 1,500 families as members, and to be in contact with groups and families all around the world.

Families of SMA (FSMA)
Families of SMA was founded in 1984 for the purpose of raising funds to promote research into the causes and cure of the Spinal Muscular Atrophies, and to support families affected by SMA.

The Muscular Dystrophy Association (MDA).
The Muscular Dystrophy Association is the source for news and information about neuromuscular diseases, MDA research and services for adults and children with neuromuscular diseases and their families.

Our SMA Angels
Our SMA Angels was founded in 1998 as a site dedicated to children with SMA. Come meet more than a hundred children, read their stories, see their faces. These little angels will touch your heart.