Links

Because SMA is not a well-known disease, we must take a pro-active stand to educate ourselves and our communities about this devastating disease. The following websites are organizations which provide information and support for family and friends who have been affected by Spinal Muscular Atrophy.

Families of SMA
In 1984, a small group of parents across the country banded together to support, comfort and educate each other about the devastating disease affecting their children; Spinal Muscular Atrophy. Their purpose was twofold—to support families affected by SMA and to fund research leading to a treatment and eventually, a cure. Families of SMA has grown to an international network including 30 volunteer Chapters throughout the United States

FIGHTSMA
This is a national organization committed to accelerating a cure for spinal muscular atrophy (SMA), the number-one inherited killer of children under two. On this site, you will find up-to-date reports from the research front. And you will find ways that you can become involved in this fight yourself.

Gwendolyn Strong Foundation
The Gwendolyn Strong Foundation (GSF) seeks to raise awareness about and fund research for Spinal Muscular Atrophy (SMA), the leading genetic killer of young children, and support those impacted by SMA and other life-altering diseases.

Hope & Light foundation
Through faith, hope, and love, the Hope and Light Foundation endeavors to eliminate Spinal Muscular Atrophy, empower our community, and create a foundation stone upon which cures for all childhood genetic diseases can be built.

Miracle for Madison & Friends
Miracle for Madison & Friends is dedicated to raising money to help OSU researchers find a cure for Spinal Muscular Atrophy (SMA). This website is packed with information on SMA, including ways to help find a cure, updates on research, merchandise to show your support as well as pictures and stories about Madison and her many friends.

Our SMA Angels
Our SMA Angels was founded in 1998 as a site dedicated to children with SMA. Come meet more than a hundred children, read their stories, see their faces. These little angels will touch your heart.

SMASPACE
The original Spinal Muscular Atrophy (SMA) social network.

SMA Support Inc.
SMA Support Inc. was founded in 1999 as a non-profit, tax-exempt 501(c)(3) charity organization dedicated to providing support in the form of equipment and supplies not covered by insurance to family, as well as emotional, financial and informational support to friends, individuals and caregivers on all aspects regarding the devastating genetic disease Spinal Muscular Atrophy.

Sophia’s Cure
Sophia’s Cure Foundation is a non-profit 501(c)3 public charity which was formed shortly after our daughter was diagnosed with Spinal Muscular Atrophy. The foundation was created to assist in funding for clinical research towards finding a cure for SMA and to offer support to families affected by this disease by providing advocacy, awareness, education and support.

The Jennifer Trust for Spinal Muscular Atrophy (JTSMA)
The Jennifer Trust for Spinal Muscular Atrophy was founded in 1985 as a support group for people with SMA and for their families. Since then it has grown to have over 1,500 families as members, and to be in contact with groups and families all around the world.

The Muscular Dystrophy Association (MDA)
The Muscular Dystrophy Association is the source for news and information about neuromuscular diseases, MDA research and services for adults and children with neuromuscular diseases and their families.

The SMA Foundation
The mission of the Spinal Muscular Atrophy Foundation, a 501(c)(3) tax-exempt foundation, is to accelerate the development of a treatment or a cure for SMA, the number one genetic killer of infants and toddlers. The Foundation is dedicated to preventing the death and suffering of thousands of children whose lives depend upon increasing research funding to fulfill the scientific opportunity to cure the disease.