SMA Angels Charity
100% volunteer, non-profit charity dedicated to fight in the battle against
Spinal Muscular Atrophy "SMA"
The goals of the charity are:
Raise money for research devoted to finding a cure or treatment for SMA
Provide funding for medical assistance and better quality of life for children with SMA
Increase awareness and education about SMA.
In 1997 Cassidy and Skylar Swanson were diagnosed with the severest form of SMA. The diagnosis… “they will never sit, walk or stand and they will die before the age of two”. Family and friends wanted to help and SMA Angels Charity was formed.
On June 9th, 2006, Cassie left this earth to follow her dreams. Cassie died suddenly of respiratory failure, which is the number one cause of death in children with SMA. Skylar celebrated her 22nd birthday this year. Skylar is a true warrior who continues to fight and live her life to the fullest. Cassie and Skylar have touched many lives and have been an inspiration to all who have known them.
There are thousands more children and families who are fighting this deadly disease and they need our help. We are very excited to share that we now have two FDA approved drugs to treat SMA. These treatments are proving to be very effective in managing SMA. We are very grateful to all of the scientists, generous donors and families who have contributed and worked so hard in this battle. We are thankful for a Treatment but will "Not Give Up" until there is a CURE.
Please Join Our Fight!